Outreach
The Shimamura lab believes in the importance of reaching out to the broader community to provide education and to foster engagement. We strive to make our scientific and clinical communities more inclusive and diverse.
A few examples of our outreach efforts include:
Hosting an Shwachman Diamond Syndrome Family Day to provide updates from the SDS Registry.
Presentations about bone marrow failure to patients and families at Camp Sunshine in Casco Maine (add photos)
Participating in the SDSLive webinars hosted by the SDS Foundation to educate the SDS community about research advances from the Registry and from the Shimamura lab (2021)
Speaking about genetic neutropenia conditions at the National Neutropenia Network family conference (2021)
Fielding questions from patients and families at the annual RUNX1 meeting (2021)
Serving on the medical/scientific advisory boards for a number of foundations such as the SDS Foundation, RUNX1 Foundation, DADA2 Foundation, MDS Foundation, and Severe Chronic Neutropenia International Registry.
SDS Registry
Learn more about the SDS Registry, and how it is helping to accelerate research and treatment for patients with Shwachman-Diamond syndrome.
